Everything got messed up becasue there were no open beds in the ICU. We got up Wednesday morning, I had taken a shower and was getting Matthew dress so we could go have breakfast. David was drinking some water. My cell phone rang... surgery canceled, no ICU beds.
Great... what the hell do we do now? Wasted a whole freakin day of vacation time for NOTHING. I am still pissed. Surgery is now December 28th. At least we will be in the new Mott for this one and chances of them delaying it again are slim, no surgery's the week of Christmas will give the kids in ICU more time to get better and out of there.
Friday, November 25, 2011
Sunday, November 13, 2011
Hell Week is here :(
It's Sunday night... I am VERY nervous right now. I've got so much to do tomorrow.
-Go to work
-Pack my clothes
-Pack Paul's clothes
-Pack Matthew's clothes
-Pack whatever I think David is going to need.
-Try not to freak the hell out
Luckily, my parents are going to come over for a little bit tomorrow evening. Paul isn't going to be home so I am glad they are coming over.
I don't know what to do. What to expect, yeah I've been through this twice before but he was five days for the first one and 10 months for the second. He's now five... what do I do with a five year old in the hospital recovering from heart surgery?
I'm taking books, dinosaurs, stuff to color with and some cars. Hopefully that's enough... oh and video's.
Sigh...
-Go to work
-Pack my clothes
-Pack Paul's clothes
-Pack Matthew's clothes
-Pack whatever I think David is going to need.
-Try not to freak the hell out
Luckily, my parents are going to come over for a little bit tomorrow evening. Paul isn't going to be home so I am glad they are coming over.
I don't know what to do. What to expect, yeah I've been through this twice before but he was five days for the first one and 10 months for the second. He's now five... what do I do with a five year old in the hospital recovering from heart surgery?
I'm taking books, dinosaurs, stuff to color with and some cars. Hopefully that's enough... oh and video's.
Sigh...
Wednesday, November 2, 2011
Two Weeks
I sit here thinking, two weeks from surgery date. Two weeks from right now he’ll be in the ICU recovering from open heart surgery. I am scared, terrified. I show no emotion about the matter currently. It still seems like a dream to me. Like it’s not really going to happen. Every phone call I make in prep for this date makes it seem more real. I’ve called the hospital reservation line and made reservations at the Red Roof Inn the night before surgery. I’ve called the Ronald McDonald house and put our name on the list.
I’ve called the school and had David put on the block list at school effective November 15th through the end of the month. This will allow me the freedom of NOT having to call him off school every day and I won’t get the phone call telling me my child wasn’t in school. I’ve also talked to his IEP people. They were going to re-evaluate him the week before Thanksgiving… well… now he’s having surgery the week before so I called them to get those dates moved up. I’ve even called Matthew off for the 16th so he can be there for the surgery.
I’ve called my orthodontist and moved my next appointment up a week. It was scheduled for the 14th but I’m going to be freaking the hell out that day and that will probably be the only day I work that week so it won’t give me a chance to make that time up. So it’s on the 9th instead.
Then the part that really has me stressed out…. We can NOT afford for me to miss work without pay. As of right now I have a total of two days and two hours. Since the week after surgery is Thanksgiving… IF David is still in the hospital then, I will go to work the Wednesday before Thanksgiving and then as long as I work that day and the Monday after I will get paid for the Thanksgiving holiday. So then I will only be missing one day and five hours of pay on that pay check. Hopefully he’ll be home from the hospital a week after surgery but we will have to wait and see. Knowing my luck I’ll be at work that Wednesday and then they will say he can go home that day.
I do NOT want to leave my baby in Ann Arbor without me, but what else am I going to do. If I don’t work Wednesday and Monday then I will miss a whole week worth of pay and we can NOT afford that.
Well enough of my sob story.
I’ve called the school and had David put on the block list at school effective November 15th through the end of the month. This will allow me the freedom of NOT having to call him off school every day and I won’t get the phone call telling me my child wasn’t in school. I’ve also talked to his IEP people. They were going to re-evaluate him the week before Thanksgiving… well… now he’s having surgery the week before so I called them to get those dates moved up. I’ve even called Matthew off for the 16th so he can be there for the surgery.
I’ve called my orthodontist and moved my next appointment up a week. It was scheduled for the 14th but I’m going to be freaking the hell out that day and that will probably be the only day I work that week so it won’t give me a chance to make that time up. So it’s on the 9th instead.
Then the part that really has me stressed out…. We can NOT afford for me to miss work without pay. As of right now I have a total of two days and two hours. Since the week after surgery is Thanksgiving… IF David is still in the hospital then, I will go to work the Wednesday before Thanksgiving and then as long as I work that day and the Monday after I will get paid for the Thanksgiving holiday. So then I will only be missing one day and five hours of pay on that pay check. Hopefully he’ll be home from the hospital a week after surgery but we will have to wait and see. Knowing my luck I’ll be at work that Wednesday and then they will say he can go home that day.
I do NOT want to leave my baby in Ann Arbor without me, but what else am I going to do. If I don’t work Wednesday and Monday then I will miss a whole week worth of pay and we can NOT afford that.
Well enough of my sob story.
Tuesday, October 25, 2011
Surgery date is...
November 16th.
Sooner then wanted but Dr. Bove makes his own schedule and you basically do it when he says which in the end is fine by me. Not really the best time of the month for us but we will deal. This date is also Grandma Barb's birthday. Again, not a date I would have chosen. But... his last surgery was June 12, 2007 when he was 10mo old, that day was also the 3rd wedding anniversary for Paul and I, and since it's been so long since he's had surgery, apparently it's good luck for his surgery's to be on an important date.
So we've got three weeks to make our arrangements. Do I call the Ronald McDonald house and put or name on the list? I'm going to call them tomorrow and ask, and call the hotel line and make reservations thru them for an area hotel for the night before so we'll get the discount.
Pre-op is the day before surgery.
I'm nervous, I feel like I am in a fog, like this really isn't happening, like it's a bad dream and I want to wake up.
Sooner then wanted but Dr. Bove makes his own schedule and you basically do it when he says which in the end is fine by me. Not really the best time of the month for us but we will deal. This date is also Grandma Barb's birthday. Again, not a date I would have chosen. But... his last surgery was June 12, 2007 when he was 10mo old, that day was also the 3rd wedding anniversary for Paul and I, and since it's been so long since he's had surgery, apparently it's good luck for his surgery's to be on an important date.
So we've got three weeks to make our arrangements. Do I call the Ronald McDonald house and put or name on the list? I'm going to call them tomorrow and ask, and call the hotel line and make reservations thru them for an area hotel for the night before so we'll get the discount.
Pre-op is the day before surgery.
I'm nervous, I feel like I am in a fog, like this really isn't happening, like it's a bad dream and I want to wake up.
Monday, October 24, 2011
David's Learning Wall
David needs help, the help he didn't get in pre-school. Yes I am bitter about it too. So... I made David a learning wall. Matthew is more then happy to help David with it too.
I went to the dollar store and got the alphabet, I was glad to see it was already cut and not one long sheet. I taped it onto the wall. He has to get the stool to reach the top row but I've told him to trace the letter with is finger. Matthew keeps pointing out letter and saying them out loud to David. Hopefully this helps David start to learn some basics.
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