David had his surgery May 31st, it went well. They patches the hole/aneurysm in his heart but there was still a 1mm leak. He spent two nights in the ICU, one in the bay and the other in private room. His tummy had a hard time waking up from the anesthesia so he had to have an NG tube to drain the acids off his stomach. We moved up to the floor (a regular room) on Saturday. On Monday we were told we were going to go home after the chest x-ray and echo. This echo was what was really going to tell us if we could go home or not. If the leak was bigger then he would be going back into surgery. We were hoping for it to be gone but it was still there but it hadn't changed so we were free to go!
Last night David had a rough night. He woke up coughing because same as last time he is having a hard time coughing up the gunk in his lungs. But he woke up FREAKING OUT. I think he was having a hard time breathing was afraid to cough hard because it hurt. But all of a sudden his arms and legs hurt, like tingly. I panicked thinking he was having a stroke and called his cardiologist here. By the time she called back which wasn't that long he had calmed down. I think he just had a major panic attack. So he slept with me last night.
Today he seems to be feeling much better. The boys were with my parents and my Mom stayed on top of the Tylenol for his pain. I just HATE seeing my baby like this.
But on a darker side.
Some of my friends on facebook I had seen comment on someone else about their daughter Nora being at Mott with heart issues. I investigated her and found out that Nora was born back in July and has been at Mott for all but nine days of her life battling heart defects. I had remembered seeing the name Nora when we were there in January. Nora received a heart transplant two or three weeks go. Things looked good at first but then she had to go back on ecmo (life support) and just kept going downhill. Why we were down there they though she was rejecting her heart. Fount out she wasn't but had very little heart function. They took Nora off life support and let her go to heaven today.
Then there is Lucy... the link to the blog about her is on the right. She's about the same age as the boys. A little older I think. She's been fighting brain cancer. Was doing really well, then she spiked a fever here a day or so ago. Then was moved to ICU they thought meningitis. Then her Mom posted this morning that Lucy's cancer is back and there isn't anything they can do. Lucy will be making her way to heaven soon.
Nora's mom had someone tell her "Don't pray for God to heal her, pray for God to help you through whatever he has planned".
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