How it's going...

So update should happen right?


First Lucy… She’s doing better. Had meningitis I think. Well it kicked her butt. I’m still not 100% sure if her cancer is back or not. I don’t ‘think’ so. But I did find out she was almost brain dead. I think the meningitis gave her a false cancer reading. I’m relieved she’s doing better but she still has a long way to go. She’s in rehab learning to do everything again, and gaining strength. Lucy has an older sister Ella, who is very close to her sister and then a little brother Jack who is too young to understand but misses his Mommy. Kate is Mom, she spends 99% of her time with Lucy. She inspires me, I have no idea how she stays so strong.

Then Owen… the link to their journal is on here somewhere. I love Owen. He’s tugging at me too because he’s so stinking cute. He’s looking toward a heart transplant. This one is heavy on my heart because he’s a heart baby like David. Owen is an awesome kid though and the bond he has with his older sister is AMAZING. I mean just WOW. Owen’s mom inspires me too. All the stuff Owen needs to survive, he’s on oxygen 24/7. She stays strong.

Both families are so far away. Lucy is in Tennessee around St. Jude I think. Owen is in Arizona I think. If I had my choice to meet anyone it would be Owen. I check my Journal’s every day for updates on these two families.

Back on Michigan ground though…

David is doing AWESOME. There is still a 1mm leak, it will be monitored with echo’s every three months. In the meantime let him be a normal boy so that’s what we are doing. We also found out that they are moving him to first grade! On his ADD meds when they tested at the end of the school year he tested above average in math and reading. One of them he was only one point below Matthew, and two below in the other. So WOW!!! Where has he been hiding that? They left the final decision up to us and we decided to go ahead and let him go to first and see what happens.

With summer here we’ve done one camping trip without David. Since Paul and I spent so much time already this year with David because of this two surgeries my Mom suggested we leave David with her and only take Matthew camping so he could have some alone time with us. Matthew made a comment to me that hurt, I had just taken the last serri strips off David’s chest and Matthew says “mommy do you still love me now that David’s heart is fixed?”. Why would he think that? So that sealed the deal on a Matthew only camping trip. I think he’s feeling much better now.

We have another camping trip the weekend after July 4th. My parents and David are going with is on this one. I’m excited sorta… I wish we had a camper instead of a tent but when hauling the boat it’s kinda hard to haul a camper too.