I cannot believe this is happening to us, to David. It will be four months since his surgery on Thursday and we are already headed for another one. Yesterday he went for a routine echo to check the work that had been done during surgery. That looked GREAT! But now there is another problem, one that was not there four months ago when they did his exit echo. This almost sent us to Mott via ambulance yesterday.
Dr. T has been working with Dr. Goble for the last year and she wanted him to do David’s echo before he left. He’s the one that gave us the bad new seven months ago that David needed another surgery, though we knew that one was coming. He was again the one to give us the bad news though this one was NOT expected at all. Just below the aortic valve there is a hold, causing an area to balloon out. Dr. T’s words were “That’s NOT supposed to be there”. It was not there four months ago and it’s already at a sage 5. Not totally sure what that means just that it’s not good.
Dr. T was so worried about the findings that he sent the echo down to Ann Arbor and had one of Dr. Bove’s head cardiologist look at it there. He agreed with Dr. T’s findings, but because David is healthy and not showing any symptoms that there was no need to send us down right now. They would have Dr. Bove look at it when he got out of surgery.
The call from Dr. T came in last night about 6:20pm. Dr. Bove agreed with the echo results and his secretary would be calling me with a date. This surgery will be within the next 2-3 weeks. I am not ready for this, this was not in our plans for this summer. This is not supposed to be happening. Why must we go through this again, why must David suffer through this again? It’s not fair.
I know there are kids out there worse off than David, kids needing heart transplants, on oxygen 24/7. Kids die from heart defects every day. We are lucky to have David, as healthy and happy as he is. Not everyone is so lucky. But I wish my boy could be normal. Normal like this brother. I wish he didn’t have all these difficulties and challenges to face.
I know that this too will just be a minor bump in the road once it’s done. But my anxiety has hold of me pretty good right now and I am stressing.
2 comments:
I'm so sorry to hear this news. I'll be thinking of you.
Sending heart hugs to you all.
Dear Sarah,
Our prayers are with you. I have an almost 3 year old daughter with a liver transplant at 5 months. We have these roller coaster up's and downs with complications / routine childhood stuff that cause her labs to go hay wire and then we have to rule out rejection / extra medications / hospitalizations etc.
I pray that you will be blessed with the strength you need to go through this. Prayers being said for your whole family.
God Bless you and David! Mel
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